Babies are God’s blessings to us, but not every child is born healthy.
Unfortunately, there are many babies who are born with severe health issues that put a lot of emotional and financial stress on their families. But, God works miracles and he is always working for our good! It was back in 2003 when Brianne Jourdin gave birth to her precious little baby girl. She named her baby Kenadie, but the little girl only weighed in at 2.5 pounds and measured just 11 inches in length.
Not only was she very small, but part of Kenadie’s brain was missing. The nurses who were caring for Brianna and Kenadie called the little girl “Thumbelina.” Doctors then informed Brianne about her daughter’s condition and said that the little girl would most likely die from the severe brain damage she had. In fact, they gave her just days to live. Brianne took Kenadie to be baptized the day she was born. “It was like mourning,” Brianne said.
“The idea of all of the life that you imagined for your child has suddenly been taken away.” But, Kenadie lived past the expectancy the doctors gave her. And, at 8 months old, Kennedy was diagnosed with a rare form of primordial dwarfism. This condition can cause premature aging, bone fragility, respiratory issues, and many more scary medical issues. But, 14 years later, Kenadie is still alive and she is thriving! This little girl is still baffling the doctors that once said she wouldn’t make it.
Two of Kenadie’s biggest passions are swimming and ice skating. For a little girl who wasn’t even supposed to live longer than one day, Kenadie has a full social life that is packed with skating classes, swimming lessons, and playing with friends after school.
Kenadie’s 10-year-old brother, Tyran, is only 10 years old, but he towers over. Despite the extreme size differences between the two siblings, they get along just like any other brother and sister would! They have their days, but Kenadie won’t let her small size hold her back from living a full life with her family!
“She’s kind-hearted, she is loving and wants to share everything with everyone. She is feisty, determined and independent,” Brianne said that Kenadie is just like other children when it comes to following her passion, and she couldn’t be more proud of her little girl’s achievements! “It makes me proud– it makes me cry– I cry every time she’s on the skating rink. Everything she does I cry,” Brianne said. “She has definitely proved all those doctors wrong. She had defied all odds. She has overcome so many obstacles.”
Even though little Kenadie is making a way for herself and staying positive, the road ahead is filled with obstacles. She faces some serious medical threats, in particular, fragile and thin bones, somethings that are for the condition she has. Along with that, Kenadie also faces the danger of developing scoliosis or an aneurysm. These issues are not easy to deal with, and it scared Brianne deeply.
“Having Kenadie definitely tested my faith many times – watching her struggle isn’t easy,” Brianne said. “It’s a reality we’ll lose her – I lose my breath for a moment thinking about it. My hope for the future for Kenadie is just that she is happy and that she finds things that make her happy and make her smile.” Watch sweet Kenadie and her mom in the video below:
So, what exactly is Primordial Dwarfism? There are only around 100 people in the world with the rare genetic condition, primordial dwarfism. People with primordial dwarfism are born at extremely low birth weights. After birth, growth continues at an extremely slow rate, leaving affected individuals years behind their peers in size.Unlike many other forms of Dwarfism, Primordial Dwarfism differs in that all of the bones and organs of the body are proportionally smaller than in an average person, giving them what many have described as a ‘doll-like’ appearance.
There are as yet no effective treatments for primordial dwarfism. It is known that it is caused by inheriting a mutant gene from each parent. The lack of normal growth in the disorder is not due to a deficiency of growth hormone. Administering growth hormone, therefore, has little or no effect on the growth of the individual with primordial dwarfism. Most primordial dwarves do not live past their teens and face serious medical threats because the bones of primordial dwarfs are very thin. They are also at greater risk of an aneurysm, a bulge in a blood vessel that can suddenly burst and kill.
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What You Probably Didn’t Know About Primordial Dwarfism
Kenadie is just one of the individuals in the world who was born with primordial dwarfism, which is also referred to as PD. Primordial dwarfism is a form of dwarfism that results in a smaller body size in all stages of life, beginning before they are even more. More specifically, primordial dwarfism is a diagnostic category that includes specific types of profoundly proportionate dwarfism, in which individuals are extremely small for their age, even as a fetus. Most individuals with primordial dwarfism are not officially diagnosed with the condition until they are about 3 to 5 years old.
Medical professionals typically diagnose a fetus who has primordial dwarfism as being “small for gestational age”, or as having “intrauterine growth disability” when an ultrasound is conducted. Typically, people with primordial dwarfism are born with very low birth weights. After birth, they continue to grow, but at a much slower rate, and this leaves individuals who have primordial dwarfism years behind their peers in terms of stature and in weight.
Most cases of short stature are caused by skeletal or endocrine disorders. However, the five subtypes of primordial dwarfism are among the most severe forms of the 200 types of dwarfism. And it is also quite rare, some sources estimate that there are only 100 individuals in the world with the disorder. However, some other sources give the number of people currently affected in North America as being as high as 100.
There are as yet no effective treatments for primordial dwarfism. It is rare for individuals who have primordial dwarfism to live past the age of 30. And, since primordial dwarfism disorders are extremely rare, misdiagnosis is common. Because children with PD do not grow at the same pace as other children, poor nutrition, a metabolic disorder, or a digestive disorder may be the initial diagnosis. In fact, often time the correct diagnosis of PD may not be made until a child is 5 years old and it becomes apparent that the child has severe dwarfism.
You intended to harm me, but God intended it for good to accomplish what is now being done, the saving of many lives. Genesis 50:20
Life’s Curve Balls: You’ve probably heard about or seen an Australian boomerang, an aboriginal hunting weapon that has become a popular souvenir and toy. The L-shaped piece of light wood, when thrown by a practiced expert, travels away from its thrower in an arc before returning to the same spot from which it was thrown. Often what we give to others is what we end up getting for ourselves. When others intend to hurt us, God protects us and transforms our suffering into strength. The negative impact echoes back to those who wished us harm. While no one likes experiencing pain, disappointment, and betrayal, we can take comfort knowing that our wounds will not destroy us. Our Father uses everything in our lives to equip and strengthen us, transforming anything that others might throw at us. Even when life throws us a curve ball, we know God’s going to use it to score a victory in our lives. Pray: “Dear God, I don’t understand some of the events that I’m experiencing right now, but I know that you will use them for my good and for your glory.”
See, the former things have taken place, and new things I declare; before they spring into being I announce them to you. Isaiah 42:9
Proclaim the Good News: Even though our society is not as formal as it once was, we still follow traditions around major events. For engagements, weddings, and the birth of children, many people still send out announcements to let the world know their happy news. Other formal announcements similarly report something that has already happened, relaying news that others need to know. Our Father not only proclaims the good news of grace through Christ, but he foretold that news for hundreds of years before Jesus’ birth. Similarly, he often prepares us for what’s about to happen in our lives even if he doesn’t outright announce it to us. He wants us looking ahead, placing our hope in him. As we are transformed into the likeness of Christ, we have good news to announce, too. We know how to receive forgiveness of sins, enjoy an abundant life, and spend eternity in heaven. Such news is too good to keep to ourselves! Pray: “Father, thank you for the good news of salvation through your Son, Jesus. I’m grateful for the way you announce good news and keep your promises.”